What are Tubular or Tuberous Breasts?

***The following links will take you to the National library of Medicine's National Center for Biotechnology's Breast Anomalies Page (That's a mouthful). They show black and white pictures and diagrams of Tubular breasts, also referred to as Tuberous Breasts.***



I was reading about my breast type and found this on Wikipedia. I understand that Wikipedia is not a "reliable" source, but reading what the author of the article wrote concerning my breasts, I felt compelled to share.
 
"Tuberous breasts are not simply small or underdeveloped breasts. The effect of the condition on the appearance of the breast can range from mild to severe, and typical characteristics include: enlarged, puffy areola, unusually wide spacing between the breasts, minimal breast tissue, sagging, higher than normal breast fold, and narrow base at the chest wall. The condition can affect the ability of women to breastfeed as in some cases the breasts, including the milk glands, have not developed enough to produce breast milk. However, other physical aspects of fertility and pregnancy are not affected by the condition.”

I've underlined the text I feel pertains to my breast type and go into specifics bellow.

In my case...

My Type
Type I (Please click on the link to take you to a diagram)

Small...
I have small breasts. I don't fill out shirts very well and often rely on under-wire bras to give me lift. I don't usually purchase padded bras. Since I'm petite, 5 feet, 3 inches tall, having smaller breasts doesn't look odd on me. My breasts are on the smaller B side. I mostly have to move up in sizing due to the circumference of my upper chest, more so than by breast size.

Mild(ish)...
Since my breasts seemed normal to me, and my husband never mentioned anything, I say my breasts are on the mild side. I also think they are mild in the scale because my breasts seem proportional to one another. I've read of cases where one breast is more affected than the other and there is a difference in shape and/or size. I am able to breastfeed my son, some women with this issue cannot produce any milk.

My Characteristics...
I definitely have enlarged and puffy areola (Click on link for diagram. Mine are type III). My areola also appear to be much too big for my breast size (Mine are Type II).
Thankfully, when my breasts are perky my tubular breasts are not as noticeable. But they do sag! BOOOO.

I also have, "Unusually wide spacing between the breasts." It is most noticeable when I am not wearing a bra. I've never had "natural" cleavage.

Lactation...
I am able to produce some breastmilk. I have been told by 2 lactation consultants that there could be a possibility that I may make more breastmilk with subsequent pregnancies. I'm hopeful.

Fertility and pregnancy were not affected.


Tubular Bells :)




-km

Tubular Breasts

Do you remember the Teenage Mutant Ninja Turtles? They had their own lingo, they used words like Cawabunga, dude...and Tubular.

I never thought I would refer to myself as "Tubular" but oh me oh my, life has it's way of dealing with things.

After consulting with over four lactation consultants I was able to give my lack of milk production a reason...

I have "Tubular Breasts!"

And not in a good way.

Most breasts are round (I know not all, but for the sake of this blog, most boobs are) mine, on the other hand are longer. When I wear a bra my breasts look normal. A good B-Cup. When I don't wear bras, my breasts appear pointy. I had never noticed. I guess I was never into boobs. My husband had never mentioned anything either.

When I was pregnant  my breasts did not grow much. I often read about women getting enormous boobs and unfortunately I didn't. Turns out my breasts don't have enough milk ducts to make a lot of milk, so there was no expansion. During my second trimester I felt them get bigger, but then they didn't seem to grow anymore. I then developed stretch marks on my breasts. Both of those are signs of a problem, I later learned.

One of the lactation consultant advised me to use herbal supplements to see if the milk flow increased. I used Fenugreek as well as Blessed Thistle. Blessed Thistle didn't work for me, but Fenugreek did. For over 4 months I took 9 fenugreek pills, three times a day. My pee, my pits, my sweat smelled like maple syrup (Fenugreek is used as an imitation flavoring for vanilla, butterscotch and maple syrup).

I never made much more than 4.5 ounces of milk, and that's combining both of my breasts!!! So discouraging. So, I decided to look into medication that might help me. The lactation consultant perscribed me Domperidone.


Domperidone is the only FDA drug sold in the United States that is prescribed to boost milk production. There are other medications that are used in other parts of the world, but unfortunately not sold in the U.S. Domperidone is not just used for cases like mine, instead it was found to help mothers after it was produced for other reasons. Some women taking the medicine for its intended method found that they started lactation and/or felt their breasts changing. 

I was only prescribed the medication for 10 days. The first two days I was in heaven. It worked!! I remember sleeping with my son as he fed on my breast. I felt the milk flow like never before. By day three, I noticed a drop in production. It continued. After discussing the results with my lactation consultant, I decided to go on another 10 day run. Desperate mommy. The results were no different. The first two days were good and then back to normal. 

I cried so many times. Days of crying, feeling like an unfit mother. I was extremely hard on myself. My feelings of incompetence filled our home. Thankfully, my husband was encouraging and loving. Together, my son, my husband and I breastfed for over a year!!

If you are going through this, perhaps not tubular breasts, but through a lack of milk production, keep trying. What motivated me was the fervor in which my son demanded my breast milk! He loved it. As he got older it did get harder. I hardly made enough milk to merely satisfy his thirst. I did start to feel resentment when he would suck on my breast and quickly turn away because he knew it was not enough. About a month or two after that I decided to begin to ween. He is now 15 months and still misses breastmilk!! But it was the best thing for both of us. He wasn't feeling satisfied, which lead to major crankiness!! And I could finally be OK with being a Mom, no breastfeeding required for that!

I am happy I stuck it through. I know other women would have stopped and not gone to the lengths I have. That is also OK. Breastfeeding can be a real bitch! I tell you this because I feel like celebrities and organizations tout breastfeeding as if, if you do it, you "truly" care. That ladies and gents is not true. Please don't beat yourself up over it, too. Be happy that you have a baby to share life and love with. Breastfeed as best you can and enjoy life!! Time with your little one doesn't last forever. Don't spend your time feeling sad.

With so much love to give, it makes me cry!
-km

Brutally honest: Jaundice, Bilirubin & Kaiser Permanente

My babies latch was perfect. From the beginning he rooted towards my breast, learned to suck and held on. I had no idea if things were going well, but the nurses and doctors seemed happy by what they saw. My son seemed to want to eat often and everyone saw that as signs of a healthy appetite.

I was able to speak to my lactation consultant the Thursday I delivered my son, as well as a quick visit on Friday. She came in and checked on my breasts and his latch. I don't recall her grabbing my breasts and forcing out milk. My main concern was managing the C-Section discomfort and finding a comfortable position for breastfeeding. This took some trial and error and lots of help from my husband.

(I'll attach a handy picture at the bottom)

My son and I were released on Saturday afternoon. Before our departure I attempted to contact my lactation consultant. I left her a voicemail. I later found out she had taken Saturday off.

A wheelchair came to pick me up at the hospital room. On our way to the car I saw moms walking around to induce labor. Many family members waiting. Outside, I waited for my husband to bring his truck to the front. I chatted with the nurse. My son was placed in his car seat by his daddy and off we went.

Getting in and out of the car was painful. But everything seemed great. I rode in the back with my son. He looked small. He was quiet. We got home and maybe we napped. I also took pain medication prescribed by the doctor. I fed my son, and soon the afternoon turned to evening. I remember feeding him throughout the night.

We had our first baby-well visit the next day, Sunday. But, we forgot to set our alarm! Turns out that same day was daylights saving time. Grrrr. We were over two hours late!

It took us 30 minutes to get to the visit.

Once there we were quickly seen. Our first time at doctors office! It was exciting! Two new parents figuring things out. Happy. Nervous. Anxious. Carrying and loving. Exactly is it should be.

We waited for the doctor to come in. She informed us that there seemed to be a problem with my son's weight. He weighed less that day at the doctors office, than when he left the hospital. Although a fluctuation in babies weight was expected, he had lost too much weight.

The horrible truth was that this mommy had not been making enough milk for her son. Tears flow right now. The pain wont go away. It's lessened over time, as he grew, my heart healed.

Due to not making enough breast milk, my son was severely dehydrated. This is where my son getting jaundice differs from so many other cases. My son was sick because I was not making enough breastmilk to nourish him. Due to this, he was not excreting and/or peeing enough to release bilirubin from his liver. Since this had been happening since my son was born (not making enough breastmilk) he had been malnourished for some time.

By the time we arrived at the doctors, he was not crying or moving very much. Had we not visited the doctor's office that day, my son would have likely gone into seizures and could have suffered brain damage. That day was beyond words. This post took so long, because, I just couldn't. My big guy, running around, "reading on his own," demanding the world!...was once a fragile little guy, who I could have lost. I blame(d) myself so may times. So sad that this was happening to us. I had a breech baby, a sucky Version, a C-Section!! And now, I can't make milk.

Unfortunately it got a little worse. In order to know his bilirubin count they had to poke his heel but it started with his tiny arm. The incompetence I experienced at the hands of Kaiser laboratory that day was overwhelmingly disappointing. 3 laboratory technicians couldn't find his veins, but tried anyway! And then they couldn't poke his heel correctly. A bunch of freakin' amateurs!  It was a tough experience for all of us!

To help nourish him and raise his body weight, he was placed on a formula and breastmilk diet. I was never able to make much milk. Only 2-3oz of breast milk on my right breast and 1-3oz on my left, for the entire time I breastfed. Never enough :(

At the time I was tough for my son. But I was in pain, still, I was there for him first. The pain didn't matter. Honestly, my heart was in worse shape. For 3 days and 2 nights he was under bili lights and on a "biliblanket" to help stabilize his bilirubin levels. Those two use phototherapy to break down bilirubin in the bloodstream so that the body can rid itself of it through pee or stool. It worked and three days later all three of us felt much better.



Thankfully that all passed.

He's a healthy guy!


-km

P.S. Once we were at home, about 6 days after having my son, the lactation consultant calls me to follow up. She left me a voicemail. I never got back to her. She was a nice person. But she was not vigilant enough. Although Kaiser Permanente promotes a "skin-to-skin" attitude, and I was very much into it, the possibility of not making enough breastmilk was never addressed. The possibility is very real! In my case it has was all about my breast! I'll get into my specifics in a later post.

Thank you for reading.






Helpful Links:
Mayo Clinic - Bilirubin Test
Mayo Clinic - Infant Jaundice
MedlinePlus - Bili Lights